MY ONE YEAR ANNIVERSARY! Yep I have officially been home one entire year from the hospital! WOW! :)
Last year at this time I was incredibly fragile. My mom was warned repeatedly "this kid has terrible lungs, he is on thin ice and when he starts to crack, he will go down quickly...very quickly." Yikes, that sure made her nervous! Mom says her emotions (happiness & fear) from that day are still very fresh.
But look at me now...what a difference a year makes! YAY FOR ME! YAY FOR ME! YAY FOR ME! :)
*We were hoping to have a fun, simple day to celebrate this amazing accomplishment, but my heart was going super low again last night. Mom paged the cardiologist at midnight and the nurse kept a close eye on me. We are going to do a halter monitor...AGAIN...today. Oh well! We will still celebrate my special anniversary, just with a few extra wires! :)
Maxwell Bennett McKinley (MIGHTY MAX) is an adorable little boy born to his proud mommy on June 22, 2005. Born two months early and diagnosed with CHARGE Syndrome, he has faced many life threatening conditions and spent the first six months at Children's Hospital in Seattle. He is now home and working hard to get healthy and strong. Max is proving to be quite a fighter and has already blessed so many lives with his strong character and beautiful soul.
ABOUT US
Learn about CHARGE Syndrome and Meet Some of Max's Buddies!
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4 comments:
My son is almost 9 years old and spent only 48 days in the NICU (born three months early), but I still remember the day we brought him home like it was yesterday. He weighed only 3lbs, 12 ounces.
I know how much you wanted him home and how much progress he has made in this one year, due to your hard work and diligence and Max's hard work, too! Happy Anniversary!
Congratulations on your big milestone, Maxwell! Even if you're not feeling great today, you sure have accomplished more in the past year than some people manage in a lifetime. You're an inspiration to people everywhere...that in itself is a heckuva accomplishent. With a super mommy like yours, there's no telling what you'll be able to do by this time next year!!!
Happy Homecoming Anniversary, Sweet Max! I think it was about this time last year that I started reading your blog. What an amazing year you've had! Your progress is so inspiring, and I hope that the stories of my Katie's progress provide hope for you and your mommy as well. Thanks for allowing us to watch you grow, and enjoy your special day!
Love, Leslie and Katie
I have keeping up With Mighty Max updates. Could It be possible tpo be invited to your private blog?
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