We wanted to show our support for the cause (Max was two months early in addition to having CHARGE) and also to honor a wonderful family and their baby who we met during our stay at Children's. Their beautiful son, Jacob, passed away at nine months old due to complications of prematurity. He was born at just 28 weeks old.
I reminded Jacob's mommy that Max has promised me that he will not only live up to my expectations but he intends to live up to hers as well...and he thinks that will be possible because he will have a special guardian angel, Mr. Jacob, guiding him. He intends to educate everyone around him about kiddos like him and Jacob...and hopefully make this world a better place!!! :) And I promise to be his cheerleader every step of the way!
Some "Team Jacob" members after the event
Maxwell exhausted after such a long day!