This year Max has decided to celebrate Halloween as "Robot Boy." It's quite a confusing (and quite depressing for Mom) costume and it requires a one on one nurse and a lot of sedation to maintain the "appearance." We hope your costumes are slightly less intense and allow more movement! :)Max did wear his "My Little Pumpkin" hat yesterday (which everyone loved!!!) but I didn't have my camera with me! He couldn't wear the rest of the outfit because of all of his IVs and attachments. A volunteer made a super fun Halloween quilt for his crib too. (The volunteers here are so wonderful!)
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Happy Halloweenie! Amy, I don't know you well, but man, I hold you up there in my book. Only moms know where you are inside, and that fight that you have for Max shows through in him.
You have such a beautiful, cute, son, and my thoughts go to you and him everyday.
I love the pictures you gift to us, it shows me 1. How dang cute and chubby Max is getting every day, and 2. How real his battle is and how heartwrenching your days are. Thank you... Heather, Brady and Natalie Allred
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