DIFFICULT DAY

MAX'S BUG
Max is still not feeling well. I am relieved that the problem is indeed a "bug" and not a malfunction of his Gtube and Nissen, but I am so sad to see Max so sad! He has a low grade fever (100) the last two days and he is coughing like crazy with all the extra secretions.

I have had to suction his nose (doesn't drain like a "normal" nose, so I have to "drain" it for him) numerous times, and we both despise that process....but you do what you gotta do (that's what I try and remind him during the suctioning!). Max is getting so much bigger and stronger that I feel like I am in a boxing match when I am trying to suction him. He swings at my hands and grabs the tubes like crazy...it's frustrating but quite funny too!

He is slowly being reintroduced to the fortified breast milk, and fortunately the vomited has not returned. Hopefully by tomorrow he can be back to full feeds and not have too much of a setback with his weight.

He is quite lethargic but hanging in there. Quite a trooper he is. :)

NURSING
Today we got the dreaded call about our home nursing...we are being cut off next week. I knew it would happen soon but we were hoping to get out of the flu season first. I have no idea how I am going to handle all of his care on my own...it's difficult enough some days when we do have a nurse at night. And now I will be doing that care and coordination on little sleep...should be interesting. I know that we will find a way (there is no other choice!) but I am quite nervous. Not sure what I am going to do.