Sunday, August 14, 2005


Today was a very sad in the ICU at Children's Hospital. Trevor, a three week old beautiful baby, passed away after complications from a hernia in his diaphragm. He had two surgeries last week and things were looking better. His parents were finally going to be able to hold their little boy for the first time.

My mom and I talked daily with Trevor's parents, a wonderful and kind couple from Canada, and we enjoyed the mutual support we could give one another. Trevor was their first baby and their pride and joy.

Trevor is back with his creator...healthy and peaceful at last, but he will be sadly missed here.

I can't even imagine what Trevor's parents are feeling tonight...there are several times when I have stepped away from Max's room that my phone has rang or pager beeped and I fear the worst. It is the most terrifying feeling. I am so incredibly in love with Maxwell and feel confident about his future, however I also understand life is very fragile. What keeps me going is knowing that Max is getting the finest health care and his life is truly in God's hands. All I can do is give him as much love as possible and be the best 24/7 advocate for his health care, education, and future.

Good night everyone...and please remember to enjoy and cherish your blessings, family and friends. Love, Amy and Maxwell


Elizabeth said...

I'm not even sure what to say...but it absolutely reminds me to hug my two little guys extra tight today. Maxwell and our relationship with Children's is certainly changing all of us...and absolutely for the better.

Give lil' Max a kiss for me...Elizabeth

rebecca said...

Words can not express how sorry I am to hear about this loss. My heart and prayers are with all of you. I sometimes forget what I have around me, thank you for reminding me! Your strength amazes me - Maxwell is very, very lucky to have you as a mommy.