OUT OF THE ICU

Sorry for the delay in my posts...I have received many worried calls and emails. Many of you have said you start your day with a cup of java and a visit to Max's blog. So thoughtful of you! It has been so crazy busy and frustrating the last several days and just haven't had the desire to write any updates...sorry!

Good news! Max was transferred back to the floor yesterday...yea! There was much controversy over moving him...half the docs thought he should stay, the other half said he's fairly stable, let's move him and we can always bring him back up to the ICU. I personally think he is doing much better...back to the "pre surgery" Max but with a little pain. We are trying to work through that.

But I am very glad to have him back on the floor and I can be in his room all the time again. I think I may have slept for only two hours...but it is worth it to be there to comfort him. And after much asking, I was able to get us a room by ourselves!!! So the privacy is very nice and relaxing. Most likely we will give that up soon as soon as a child comes in that needs to be isolated. But for the time being, we will enjoy our special room! :)

He is back on full feeds of fortified breast milk and despite Max's "gassiness" (which makes him super fussy), all is going well there. He is back under 8 pounds again, so we need to focus on fattening him up!!!

As far as the big picture...we are in a "wait and see" period. We postponed our care conference until next week so that we have time to see how Max recovers from surgery and any changes in his respiratory status. We have changed "teams"...we were under the care of craniofacial, but as of yesterday, pulmonary is taking over. Both teams are wonderful, but Max's lungs are his #1 issue right now so I am eager to work more closely with the pulmonary unit.

All for now...Eliz and her family are coming up this afternoon to visit. Always fun to share sweet Maxwell! :)