Graduation Day is Finally Here!!!

Tomorrow is Maxwell's big day...he is FINALLY coming home! (Thursday will be his 6 month birthday...finally we get to celebrate a birthday at home! But wow, what a reminder...we have spent the first SIX months of Max's life in the hospital...yikes!)

We are beyond thrilled to be coming home...and yes, a little nervous. While I have been very involved with Max's care, there still was so much more to learn! AND all new equipment...that is the tricky part!

Per my request, I have been meeting endlessly with each of the specialists just to make certain we are all on the same page. And of course, my anal retentive personality has me charting out his medicines and procedures for when we are at home...making up charts and check off sheets, etc. for me and the home nurses. I am doing everything I can to make this transition as smooth as possible. I have heard from every parent who has been through this that it is a VERY difficult transition. Here at the hospital you have a team of supportive nurses and doctors encouraging you, cheerleading your child and serving as a crucial back up when you need help. (It is sooo funny walking around the hospital right now, because there is such a happy buzz about Max's big day...I have definitely been here too long when I have made this many friends!!! They just adore sweet Maxwell!) So while I will miss that support, I think being in the comfort of our own home on our own schedule with family and friends (and my two wonderful pups!) around will hopefully make up for that.

Please keep us in your prayers tomorrow as we make the journey up north. The feeling of walking in my home with Maxwell in my arms is beyond words. It truly is the most intense, exciting, wonderful feeling in the world. I wish I could adequately describe it and share the joy!!!

And when I finally see Max with Barney and Shakespeare...WOW, you might have to scrape me off the ceiling, I will be so overwhelmed with love and happiness!!!

Suzanne Mom and Elizabeth are coming up to the hospital tomorrow to help us get home and celebrate the big day. Should be fun...and yes, a little crazy! Watch out Bellingham, HERE WE COME!!! :)