Tuesday, December 20, 2005

Graduation Day is Finally Here!!!

Tomorrow is Maxwell's big day...he is FINALLY coming home! (Thursday will be his 6 month birthday...finally we get to celebrate a birthday at home! But wow, what a reminder...we have spent the first SIX months of Max's life in the hospital...yikes!)

We are beyond thrilled to be coming home...and yes, a little nervous. While I have been very involved with Max's care, there still was so much more to learn! AND all new equipment...that is the tricky part!

Per my request, I have been meeting endlessly with each of the specialists just to make certain we are all on the same page. And of course, my anal retentive personality has me charting out his medicines and procedures for when we are at home...making up charts and check off sheets, etc. for me and the home nurses. I am doing everything I can to make this transition as smooth as possible. I have heard from every parent who has been through this that it is a VERY difficult transition. Here at the hospital you have a team of supportive nurses and doctors encouraging you, cheerleading your child and serving as a crucial back up when you need help. (It is sooo funny walking around the hospital right now, because there is such a happy buzz about Max's big day...I have definitely been here too long when I have made this many friends!!! They just adore sweet Maxwell!) So while I will miss that support, I think being in the comfort of our own home on our own schedule with family and friends (and my two wonderful pups!) around will hopefully make up for that.

Please keep us in your prayers tomorrow as we make the journey up north. The feeling of walking in my home with Maxwell in my arms is beyond words. It truly is the most intense, exciting, wonderful feeling in the world. I wish I could adequately describe it and share the joy!!!

And when I finally see Max with Barney and Shakespeare...WOW, you might have to scrape me off the ceiling, I will be so overwhelmed with love and happiness!!!

Suzanne Mom and Elizabeth are coming up to the hospital tomorrow to help us get home and celebrate the big day. Should be fun...and yes, a little crazy! Watch out Bellingham, HERE WE COME!!! :)


Ruthie said...

Words can not express the glee and happiness I am feeling for you both right now!! I am sooooo excited for you that I am welling up inside. I hope and long for your continued success and I know that you both will thrive at home! Sending love and big smiles-

rebecca said...

Amy and Max, I have been counting down the days!!!!! I am so happy that this day has finally come for the two of you. Please, please, please call me when you are up for visitors (I will bring dinner), I am dying to meet Mighty Max!


alisen barlean said...

I am sooooo excited for you and li'l Max!!! The day has finally arrived and I will be thinking about you all day! Hope to someday come to the "viewing window!" Lots of love, thoughts and prayers,

iman said...

Hi Amy,
We don't know each other. I am the one the sent the boxes of magazines your way while you where on bed rest.
I wanted to let you know that I am so happy for you and your lil' one.
A very happy Christmas this will be for you and yours.
Peace and Happiness,

Anne said...

I have been following your story everyday since Tessa told me about your amazing journey. I am so happy for you and Maxwell. May Maxwell continue to thrive; may you continue to be his advocate; and may you relish the moment you walk through your home's doors and are greeted by your doggies -- for you deserve it.

Thank you for sharing your story with us; it truly has shown me how awe-inspiring life is when perseverance and love combine.

God Bless,
~Anne B.~

Cenci said...

CONGRATULATIONS! Finally your family will be complete! We are so excited for you both and will continue to say prayers as you start your new life with Max at home:) I am so proud of you Amy. Cooper and I can't wait to meet Max. Love you.
Lauren, Mik, Cooper, Woogee and Dakota

RebeccaA said...


I'm so happy for you and Max!

I look forward to meeting Max some day - perhaps at our first Washington state Charge meeting. :>) May God Bless you this Christmas season!
Rebecca - Nathan and Cameron's mom

sarah said...

I have followed Max's progress from WV. I also have a son named Nate. Many prayers are said for both you and Max. May your first Christmas together be filled with joy to finally be home. The photos of that cutie pie are precious!

Drew said...

Congratulations on Graduation Day! Sounds like you guys had quite a celebration. It must be so wonderful to be in your own home with your whole family. Barney and Shakespeare are going to be so happy to have you guys home too! I am so excited for you guys. Happy Birthday Max and Merry Christmas to you all.


Cheryl said...

Congratulations & Merry Christmas!! Keep on keepin on Maxwell :) Hope Santa brings you LOTS of presents!