The discussion was because of Max's pulmonary hypertension, which requires supplemental O2 even when sats are good. However, they are not sure if the pressure is in his heart is caused by a lot of the hypertension issue or because of an issue with his heart (arteries too small). So since we have to try this sooner or later, they decided to give Max a "GO" for the next month. Then we will have another echocardiogram and see if anything has changed. That should provide us many answers...hopefully.
So it's good news and bad news according to the doctors. GOOD NEWS: He can get off oxygen for now. BAD NEWS: If in fact the pressure is not due to the pulmonary hypertension, then he may require another procedure (dilation of the arteries most likely) on his heart.
And the GREAT NEWS is that he has managed to be off of oxygen during the day over the weekend and did really well! He still requires O2 at night, and boy does he get angry when you put that cannula back on him! Yikes! Watch out!
All of this is so incredibly exciting! I still bring the O2 tank around with me in case he does require it while we are out and about, but so far, no emergency hook ups! And I still keep him on the monitor 24/7 of course to ensure stable saturations.
Another good thing about all of this is the less oxygen the better for his tender nasal passages. The ENT was really pushing me to get him off the O2 because it really dries out the nose and then it bleeds and irritates the surgery site and we are trying to leave that alone so it doesn't want to close again. Keeping our fingers crossed on that issue...I can not believe it has stayed open for this many months!!! WOW!!!
SOOOOOOO EXCITING! BIG STEP! GO MAX GO!!!