Tuesday, January 02, 2007
QUICK UPDATE & SITE INFO
If you have requested but not received your "invite," please check your spam mail. Several people have found the emails going directly to there because of the address used from google.
Meanwhile, until you gain access...
Max is doing pretty well! :) We have all taken turns getting the stomach bug (again) and Max is even kind enough to share it with his nurses. I was pretty worried a few days ago about him but he has finally bounced back to somewhat his normal self.
I am quickly learning that isolation is very important for Maxwell. His immune system is truly compromised. It's amazing how quickly he can catch the latest bug and how much longer it takes him to recover.
Despite the bugs, he has reached some new milestones, which is VERY exciting, and is sporting a cool new short haircut. Incredibly handsome as always. :)
On a personal note, thanks for all the concerned emails about my health...greatly appreciated! The series of heart and lung tests all came back relatively normal. Yay! Well, ok they did diagnose me with "asthma" after a very lengthy test last week, but most likely it is stress induced...and fortunately it isn't anything serious. But my doctor highly recommended I find a way to eliminate at least some of the stress...hmm, perhaps resolving the divorce (separate post on that) will help.
This afternoon Max has OT at the hospital and then massage therapy at our house. The massages are supposed to help with his muscle tone and getting him familiar with his body. This is our third session.
This week we have our annual Birth to Three evaluation of Maxwell. We will review the goals we set in January 2006 and establish new ones for 2007! I am so excited to report everything he has accomplished! :)
Meanwhile, until you gain access...
Max is doing pretty well! :) We have all taken turns getting the stomach bug (again) and Max is even kind enough to share it with his nurses. I was pretty worried a few days ago about him but he has finally bounced back to somewhat his normal self.
I am quickly learning that isolation is very important for Maxwell. His immune system is truly compromised. It's amazing how quickly he can catch the latest bug and how much longer it takes him to recover.
Despite the bugs, he has reached some new milestones, which is VERY exciting, and is sporting a cool new short haircut. Incredibly handsome as always. :)
On a personal note, thanks for all the concerned emails about my health...greatly appreciated! The series of heart and lung tests all came back relatively normal. Yay! Well, ok they did diagnose me with "asthma" after a very lengthy test last week, but most likely it is stress induced...and fortunately it isn't anything serious. But my doctor highly recommended I find a way to eliminate at least some of the stress...hmm, perhaps resolving the divorce (separate post on that) will help.
This afternoon Max has OT at the hospital and then massage therapy at our house. The massages are supposed to help with his muscle tone and getting him familiar with his body. This is our third session.
This week we have our annual Birth to Three evaluation of Maxwell. We will review the goals we set in January 2006 and establish new ones for 2007! I am so excited to report everything he has accomplished! :)
DIVORCE UPDATE
It was definitely a good time that I started a new, more private site...this ridiculous divorce battle doesn't appear to be over anytime soon. And I'm sure I will have some venting to do.
Last week we received the proposed divorce order from the soon to be ex. Wow, it was more ludicrous than I thought possible.
Despite it being decided in court that I cannot work due to Max's needs, he is refusing to pay any spousal support....zip, zero, none. He will only pay child support as ordered by the court.
He didn't offer any suggestions...so I'm not sure what he thinks Max and I would do. How can I be Max's full time caregiver if there is absolutely no income?
Now both proposed orders are with the judge and we will wait to hear what she decides. I am hoping we don't have to appeal. I can think of much better ways to spend our money and time.
Last week we received the proposed divorce order from the soon to be ex. Wow, it was more ludicrous than I thought possible.
Despite it being decided in court that I cannot work due to Max's needs, he is refusing to pay any spousal support....zip, zero, none. He will only pay child support as ordered by the court.
He didn't offer any suggestions...so I'm not sure what he thinks Max and I would do. How can I be Max's full time caregiver if there is absolutely no income?
Now both proposed orders are with the judge and we will wait to hear what she decides. I am hoping we don't have to appeal. I can think of much better ways to spend our money and time.
Tuesday, December 26, 2006
NEW SITE REMINDER
Got back late tonight from another day at Children's...ENT appointment (positive) and hearing test (negative). Max will be happy to wake up tomorrow morning and finally get to play with all his new Christmas toys.
And we added to his treasures even more today! We stopped at the toy store and bought a lot more fun bath toys. :) Ok, I went overboard, but he is really starting to enjoy bathtime and that is so exciting!
ANYWAY, I received a lot more emails today from people concerned why I haven't been posting anything new on this site. Nothing is wrong, it's just that we started a new website. I think some people missed my entry about our new site that will be more limited to our friends, family and "cheerleaders."
The 12/18 entry explains the who, what, why. Any questions, send me an email at amysmckinley@aol.com. (The new site has videos of Mighty Max too...so cute!)
If you fit into one of those categories above and have not yet received an email invite, please let me know. Sorry if I have forgotten about you!
Ok, off to bed...no nurse last night or tonight and after today, I am very very tired!
And we added to his treasures even more today! We stopped at the toy store and bought a lot more fun bath toys. :) Ok, I went overboard, but he is really starting to enjoy bathtime and that is so exciting!
ANYWAY, I received a lot more emails today from people concerned why I haven't been posting anything new on this site. Nothing is wrong, it's just that we started a new website. I think some people missed my entry about our new site that will be more limited to our friends, family and "cheerleaders."
The 12/18 entry explains the who, what, why. Any questions, send me an email at amysmckinley@aol.com. (The new site has videos of Mighty Max too...so cute!)
If you fit into one of those categories above and have not yet received an email invite, please let me know. Sorry if I have forgotten about you!
Ok, off to bed...no nurse last night or tonight and after today, I am very very tired!
Thursday, December 21, 2006
GUESS WHAT TODAY IS?
MY ONE YEAR ANNIVERSARY! Yep I have officially been home one entire year from the hospital! WOW! :)
Last year at this time I was incredibly fragile. My mom was warned repeatedly "this kid has terrible lungs, he is on thin ice and when he starts to crack, he will go down quickly...very quickly." Yikes, that sure made her nervous! Mom says her emotions (happiness & fear) from that day are still very fresh.
But look at me now...what a difference a year makes! YAY FOR ME! YAY FOR ME! YAY FOR ME! :)
*We were hoping to have a fun, simple day to celebrate this amazing accomplishment, but my heart was going super low again last night. Mom paged the cardiologist at midnight and the nurse kept a close eye on me. We are going to do a halter monitor...AGAIN...today. Oh well! We will still celebrate my special anniversary, just with a few extra wires! :)
Last year at this time I was incredibly fragile. My mom was warned repeatedly "this kid has terrible lungs, he is on thin ice and when he starts to crack, he will go down quickly...very quickly." Yikes, that sure made her nervous! Mom says her emotions (happiness & fear) from that day are still very fresh.
But look at me now...what a difference a year makes! YAY FOR ME! YAY FOR ME! YAY FOR ME! :)
*We were hoping to have a fun, simple day to celebrate this amazing accomplishment, but my heart was going super low again last night. Mom paged the cardiologist at midnight and the nurse kept a close eye on me. We are going to do a halter monitor...AGAIN...today. Oh well! We will still celebrate my special anniversary, just with a few extra wires! :)
