Monday, September 26, 2005

NOT FEELING WELL

Poor little Max is not feeling well and has been coughing all day with lots of congestion. His oxygen needs increased dramatically today too, which is discouraging. They are going to run some tests on him in the morning.

I met tonight with the pulmonary specialist...and we discussed the different short and long term options for Mr. Max. Max is proving to be very confusing for everyone right now and we are just waiting for him to show us one way or the other what he needs.

There are so many decisions to be made...and as the only "involved" parent, it is resting all on my shoulders. That is really hard and quite frustrating! I want to make sure every decision is perfect for Maxwell...and as much as I love my family and friends, it's not the same as a fellow parent who would share in the decision making. Such odd timing for a divorce! I have had many mothers in the hospital say there is no way they could do this without their husband...but what else can I do??? This is the situation we are in, and I'm determined to provide the love of not only two parents...but a million more! Max deserves no less.

On a lighter note, Max and I took a brief nap together today...it was so cute to stare at each other while we dozed off! Actually he dozed and I continued to stare at his gorgeous angelic face...and listen to his sad little coughs!

That happened all night too...and I have a feeling we are in for a repeat again tonight. So sad to see him struggle! He already has such a small airway that any congestion really makes it hard for him to breathe.

Lastly, I am happy to report that the medical team has responded VERY well to my concerns about lack of organization. We are meeting together tomorrow to discuss our future plans. They really are an incredible group of men and women so dedicated to Max's health...it's amazing. I just want to make sure he is ALWAYS on the forefront of their mind...coming up with great ideas and incredible solutions!!! :) THANK YOU CHILDREN'S HOSPITAL!!!

Off to bed...hope Max is able to sleep peacefully and comfortably and feels better VERY soon!

4 comments:

Sara B said...

Hey Gorgeous!
That's to both of you, I just didn't know the plural of gorgeous...hmmm, something to think about! So sorry to hear that lil' Max is all stuffed up! Get better buddy! Can't wait to see and catch up with you, have so many interesting stories to share! I'm going to go check out Wayne's dating blog now...lol WTH??
Love you Guys!
Sara Blair

rebecca said...

Hang in there! Easy words for me to say but I hope they can bring you some sort of comfort (not sure how?). God has a plan for all of us. We have to have faith in what his plan is. My thoughts will be with you and Mr. Max - hope he starts to feel better really soon! Your love for him is so great and he knows it. Cuddle with him lots.

Love
Rebecca

Steph said...

Hey Amy,

So sorry to hear Max is congested...that's no fun for either of you! Please give him some extra kisses from me...

And on the "involved" parent issue, I can only imagine how frustrating that is. It makes me angry to think about it, so I can't begin to understand how hard it's been on you. You're doing great -- better than great -- and you ARE making all of the right decisions for Max...there's no doubt in my mind.

Love you,
Steph

tessa said...

Hey there beautiful
hope you both have a good day today! little maxwell feel better...having a cold is never fun....amy keep staying strong...i can't wait to see you both. give maxwell and kiss for me and maxwell give your mommy a hug for me too! take care...thinking about you both always....
love t