Thursday, September 15, 2005

ROOM AIR AND HEARING TEST

Holy Moly Max! Way to go! We have no idea how or why...but for some reason tonight Max decided he didn't need his oxygen! This is the first time EVER. He has been on room air for the past two hours. I am in complete shock and am tempted to drive back to the hospital just to see it for myself. I came home earlier today for an appointment and am returning tomorrow morning. Hopefully this amazing trend continues throughout the evening! There is a good chance he will return to needing oxygen but the fact that he can do without for a few hours is a very good sign. I am soooooooooooooooo happy right now...I just went over to Eliz's house and was screaming "room air, room air, room air!!!" :)

Max also had his hearing test today. His left ear has a mild to moderate hearing loss and the left ear has a moderate hearing loss. Both ears CAN hear. Amazing!!! As noted in previous posts, many CHARGE kids have severe to profound hearing loss...this is not the case for Maxwell, so we are quite relieved. He will require hearing aids and will be fitted in a few months. There will be another test in a month before his discharge. The audiologist did say there is an ever so slight chance his hearing could improve when the ears and canals increase in size.

4 comments:

Steph said...

WAY TO GO MAX!!!!

That's AWESOME, encouraging news Amy...so happy for you both! Off oxygen for a couple hours...and both ears can hear!!!! WOW!

Love,
Steph

Drew said...

YES!

Amy, it's so great to read the excitement in your voice (that doesn't make sense, but you know what I mean). What terrific, encouraging news!!

Good job, Max! Keep on improving little buddy, we want more good news!

Love,
Drew

rebecca said...

I could not be happier for you guys!!!!!!! Keep up the good work Max.

Luv,
Rebecca

tessa said...

Yeah max!

it is so great to hear such good news! breathing the air in the room is huge! how exciting! and hearing in both ears...it is so great to hear all this amazing new today! keep the good news coming! take care. think about you two all the time!
MUCH LOVE
T