ROOM AIR AND HEARING TEST

Holy Moly Max! Way to go! We have no idea how or why...but for some reason tonight Max decided he didn't need his oxygen! This is the first time EVER. He has been on room air for the past two hours. I am in complete shock and am tempted to drive back to the hospital just to see it for myself. I came home earlier today for an appointment and am returning tomorrow morning. Hopefully this amazing trend continues throughout the evening! There is a good chance he will return to needing oxygen but the fact that he can do without for a few hours is a very good sign. I am soooooooooooooooo happy right now...I just went over to Eliz's house and was screaming "room air, room air, room air!!!" :)

Max also had his hearing test today. His left ear has a mild to moderate hearing loss and the left ear has a moderate hearing loss. Both ears CAN hear. Amazing!!! As noted in previous posts, many CHARGE kids have severe to profound hearing loss...this is not the case for Maxwell, so we are quite relieved. He will require hearing aids and will be fitted in a few months. There will be another test in a month before his discharge. The audiologist did say there is an ever so slight chance his hearing could improve when the ears and canals increase in size.