BIG DAY AT CHILDREN'S

On Tuesday, Maxwell and I drove to Seattle for his clinic visit with surgery...the big day! I have been so excited to switch over to the big boy version of the GTube..the "Mic Key." This is his more permanent Gtube and is smaller and less invasive than the previous. He was not a happy camper during the procedure. He actually went into one of his coughing fits and threw up an amazing amount of secretions. But he did seem to feel much better after that!

It is quite difficult though to comfort a crying, sick baby and listen to a doctor explain the care and changing of a Gtube!!! Here we are talking about how to literally pull out the Gtube (yes I must do that myself...eeks!) and replace it, how to check the balloon that holds it in there, etc. and I can barely pay attention because I am trying to help Maxwell cough effectively and comfort him too. (I really feel like I should be granted a nursing degree after all of this is said and done!!! Mary, can't you work on that?)

It would definitely be helpful to have someone else with us, but at the same time, I'm trying to be as "independent" as possible because this is our life for many years! And slowly but surely, we are getting the hang of it! :)

Then we went and visited the staff throughout the hospital and wow, what a greeting! First we went to the floor and everyone was SO happy to see him! We dropped off some Valentine's for some of our favorites...Max is a very thoughtful lil' boy!!! We had arranged to meet with one of our favorite RTs from the ICU, and when we did, word spread like crazy..."Max is here, Max is here!" There were doctors, nurses, volunteers, chaplains...everyone was soooo happy to see him doing so well! It was awesome! And I learned that many of them read the blog daily...thank you to everyone at Children's. YOU ARE WONDERFUL! We hope to return the favor with our guild!