OUR BLOG

I cannot believe it has been over a month since Max's discharge from Children's! Back then it seemed like nearly every day I had a medical update...surgeries, infections, anything and everything! It's been so wonderful to be home and now start focusing on our lives together! (Yes, I know we still are running basically a mini hospital from home, but it's a heck of a lot better than being IN the hospital!) It's much more fun to update everyone on our snuggle time, our walks, and of course Max's new buddies (our dogs), Barney & Shakespeare! (They are in love with sweet Max!)

The blog has been such an incredibly helpful tool to update my friends and family on everything going on with my sweet baby and our life together....the good, the bad and the ugly. It has allowed me to simply write a few words down and not spend hours on the phone repeating the same story over and over again. And on days when my "cup overfloweth," the blog has even been a good tool for me to vent to my "support group" about other issues (the divorce, challenges of being a single mom, struggles with health insurance, etc.) impacting Maxwell. Thank you everyone for your AMAZING love and encouragement through all of this...not sure what I would have done without all of you! (I have actually had several other special needs parents start blogs now because they felt it was such an effective and therapeutic tool!)

As this blog becomes more personal, I have considered making it a private site so that only family and friends could have access. However, every day I receive emails from complete strangers who send their love and support and say they have been reading the blog daily for months now. Little did I realize when I started this blog that it would be included in so much television and newspaper coverage here in WA and back home in WV...so many people have joined the Max "fan club." Just yesterday I received two more encouraging cards from anonymous people...and this week we were sent two anonymous homemade angels!

As a single mom, this encouragement from everyone has been truly amazing and helped me get through many difficult days...I would miss the support of this loving global community! :)

Hmmm....haven't decided what to do! :) Thanks again to everyone for everything!