Sunday, February 05, 2006

OUR BLOG

I cannot believe it has been over a month since Max's discharge from Children's! Back then it seemed like nearly every day I had a medical update...surgeries, infections, anything and everything! It's been so wonderful to be home and now start focusing on our lives together! (Yes, I know we still are running basically a mini hospital from home, but it's a heck of a lot better than being IN the hospital!) It's much more fun to update everyone on our snuggle time, our walks, and of course Max's new buddies (our dogs), Barney & Shakespeare! (They are in love with sweet Max!)

The blog has been such an incredibly helpful tool to update my friends and family on everything going on with my sweet baby and our life together....the good, the bad and the ugly. It has allowed me to simply write a few words down and not spend hours on the phone repeating the same story over and over again. And on days when my "cup overfloweth," the blog has even been a good tool for me to vent to my "support group" about other issues (the divorce, challenges of being a single mom, struggles with health insurance, etc.) impacting Maxwell. Thank you everyone for your AMAZING love and encouragement through all of this...not sure what I would have done without all of you! (I have actually had several other special needs parents start blogs now because they felt it was such an effective and therapeutic tool!)

As this blog becomes more personal, I have considered making it a private site so that only family and friends could have access. However, every day I receive emails from complete strangers who send their love and support and say they have been reading the blog daily for months now. Little did I realize when I started this blog that it would be included in so much television and newspaper coverage here in WA and back home in WV...so many people have joined the Max "fan club." Just yesterday I received two more encouraging cards from anonymous people...and this week we were sent two anonymous homemade angels!

As a single mom, this encouragement from everyone has been truly amazing and helped me get through many difficult days...I would miss the support of this loving global community! :)

Hmmm....haven't decided what to do! :) Thanks again to everyone for everything!

8 comments:

ang said...

Maybe have two blogs Amy,
One private for family and close friends.

the other to give us biweekly or monthly updates of you and max for the rest of us. (MIGHTY MAX and AMY Fan Club)

Jaye said...

I agree with Ang. I know as a total stranger, you may not want to share your personal life with GORGEOUS Max with the whole of WA state! haha...but we'd sure LOVE to be able to have an update now and then...

DEBMCH said...

Amy even though I am a complete stranger please keep us updated somehow.

karin said...

Hi-- you don't know me, but I had to respond. I have been following little Max's journey since I saw the report on KOMO news in Seattle. I too have a special needs child, and it is wonderful to read your posts about all you're going through. We have spent a lot of time at Children's as well. PLEASE don't stop posting!! It's wonderful what you're doing. Thanks.

karin said...

Hi--you don't know me, but I have been reading your blog for about 2 months. I have a child who has spent a lot of time at Children's as well, and I really appreciate the time you take to log what's happening with little Max. PLEASE don't stop updating. I and a lot of others would REALLY miss the updates!! Thanks.

karin said...

PLEASE don't stop updating!! I have been reading your blog for about 2 months and check it every day. I have a child who has spent a lot of time at Children's as well and I really appreciate the time you've taken to update everyone. Thanks!

Melanie said...

Hi Amy,
I am also a stranger to you, but we have friends in B'ham who know your sister. We've been praying for you & your adorable Maxwell since you were at Swedish on bed rest. I completely understand & respect your desire to keep many parts of your life private. You are amazingly vulnerable and have encouraged many people in the process. I know your time is so valuable, but if you could keep us that don't know you personally updated on Max every now and then, I think we would all be blessed by his progress. I, for one, am honored to keep him in my prayers. You are an incredible woman, mother and champion for all children with special needs.

Mommy said...

Amy - We have only met a few times, but I continue to be inspired by you and by your beautiful Mighty Max. My daughter (who is about the same age and Max) my son and I love seeing new pictures of Max on your site. We look forward to the day when we can all get together and play.

Personally, you have inspired me with your strength, love, and commitment to make this world the perfect place for Max. He knew what he was doing when he chose you as his mommy.

Whatever you choose to do with your site, know that you both are always in our hearts. You have touched more people than you'll ever know. Thanks.