Tuesday, April 04, 2006


Well it was fun while it lasted.

Talked with the pulmonary team today and they said Max should remain on oxygen despite good saturations. They reviewed his last echo and it showed several problems and those will worsen without supplemental oxygen. I put another call into cardiology to confirm that they agree. I am HOPING he wants a repeat echo and this will show much improvement since January. However, pulmonary said not to get my hopes up because it usually takes six months or so to show that much of an improvement and therefore it will be months and months before the 02 "nose hose" will be removed. Darn it, darn it, darn it. And one more time....DARN IT!!!


Drew said...

I'm really sorry for the set back. He'll get there though. That boy is a fighter! He'll be nose hose free some day soon.


ang said...

If I've learned anything with my son, this is only a small speed bump in his road less traveled by others. When it's time for the real thing you and Max will have great joy and celebration of this event.

Steph said...

I know we'll be celebrating removal of the nose hose again...just a matter of time!

Still so thrilling to hear about all of Maxwell's latest progress...truly amazing.

elle said...

at least you know he can tollirate it