Monday, April 03, 2006


What's missing on this adorable lil' boy???
(If you can't guess, scroll down below for answer!)

His oxygen silly! Can you believe it??? It was a temporary trial on Friday and he PASSED!!! He went five hours without being on was absolutely incredible!!! I had not seen his sweet face tube free for that long of a time...EVER! So of course I snapped many, many photos and smothered his "tube free" cheeks with lots of kisses! :)

I think it goes without saying that this is a HUGE step for Mighty Maxwell. HUGE!!! :) We are trying to slowly wean him off oxygen and see how he does. But we also have to be concerned with his pulmonary hypertension, which requires some oxygen despite good saturations. I am putting calls into cardiology and pulmonary today to get their latest thoughts on how I should proceed. Right now he is on just a tad of O2 (the least amount that he has been on post heart surgery) and doing great...hopefully this afternoon we will do another successful tube free trial!!! GO MAX GO! :)


kate said...

He looks amazing!! Yeah, Max!! Hope he continues to make such great strides, and keeps being able to head toward taking away as many tubes and wires as possible. We think of both of you often and wish we could be there. My boys can't wait to play with Max someday!

Love, Kate, Jeff, Noah, and Wyatt :)

Dylan (and Kristy) said...

Wow!!!! That is HUGE! Good luck with today's oxygen-free trial. He sure does look cute.

Kristy, Ray, and Dylan

Rixmanns said...

Amy, I cried as I saw the pictures and read your post. I know how incredible this is for you both. Praise God!! You both are so amazing and we are thrilled with every hurdle leaped and milestone reached. We can't wait to see you both.

Leah, Rob and boys

ang said...

Congrats Mighty Max!! this was worth the Tease!!

Drew said...

Wow!!!!! That is absolutely fantastic news. Congratulations Max! You are amazing.


Sara B said...

I'm still SO excited for both of you...everyone I've talked since Friday has been told of mighty max's big step.
love you guys-

Steph said...



And so ridiculously handsome...big congrats to you and your Mommy on this major victory!