EMOTIONAL DAY AT CHILDREN'S

Whew, what a day. We were on the road for nearly twelve hours and that about wiped out lil' Max...and without Starbucks, it would have wiped me out too! :)

It was a very emotional day for several reasons, but I don't want to go into them tonight. Right now I just want to head to bed. I try to not think of Max's "shortcomings," but today they were there loud and clear....and it was just a little too much. He is so incredibly amazing...I just wish his "shell" (his body) could keep up with his beautiful, determined, loving and happy inner spirit.

In addition to the developmental issues today, we also were experiencing some medical concerns. And we are hoping that tomorrow we don't need to drive back to Seattle. Max is still having some difficulties with breathing, coughing, vomiting, etc. (same issues as this weekend) and the team was quite concerned....especially with the high respiratory rate. We did a blood gas and sure enough, his bicarb was up. They want to see him if he doesn't make improvement over night. My gut is that he will be feeling just enough better that we can avoid that possible hospital stay.

Now I need to close my eyes and turn off my emotions, my concerns, my questions about Maxwell...they will still be here tomorrow. Hopefully he is feeling well enough to give his mommy a happy dance and start our day off on a good note.