BIG DISAPPOINTMENT

Max and I have been excited all week in anticipation of our CHARGE family get together this weekend in Seattle. A group of us are trying to form a statewide organization as part of the CHARGE foundation. No one else quite "gets it" like another CHARGE parent and we have all gained enormous strength, understanding and love from one another.

So today was our first official get together. But this is one group you don't want to bring germs to, and what do you know? Yep, Max caught another bug.

The past few days I have noticed that Max was a little more congested and coughing. But last night that took a turn for the worse and was experiencing episodes of tachypnea (rapid respiratory rate). We counted him at 80-100 breaths a minute (while sleeping!) several times throughout the night. He is lethargic today but not miserable and his breathing seems slightly more at baseline, so I am just planning on keeping a close eye on him. He definitely isn't feeling great and on top of that, he got four shots yesterday. Eeks. But what a trooper! He cried for a minute, and with a quick snuggle, he was over it.

So unfortunately we couldn't attend today's get together and we were seriously disappointed! I was sooooooooooooooooo excited about having all of our amazing CHARGE kiddos together and having the opportunity to talk with all the parents. We are planning another event in the fall so maybe I will quarantine Max the month before to ensure he is healthy enough to attend!