CARE CONFERENCE & PRAYER REQUEST

Yesterday was our care conference...and we had some disappointing news. Without going into too much detail, basically Max's lungs are still suffering from chronic lung disease because of his prematurity and time on the ventilator. There are some options the team is considering and several are not fun. Well none are "fun"...but some are less favorable than others in my opinion.

I am very, very frustrated right now with the medical team and I let them know it yesterday and meeting officially with a coordinator today to make my concerns heard loud and clear. Until I organized the care conference yesterday, there was little coordination among the different specialists...why did I have to be the one to focus everyone together? Some days I just want to be his momma...and not be worried that we are missing something medically. And there have been several instances recently that this has happened...I know I am his "best advocate" as everyone likes to say, but hey, aren't others watching out for him too? It is very frustrating because his attending doctors rotate so often...so consistency is a big issue.

Additionally, Max had another one of his "spells" last night...so my frustration is compounded with a lack of sleep. Eeks. I went and bought several books yesterday "Baby Whisperer", etc. to see if we can do something differently to appease him. I am hoping these spells are not medically related...but they are definitely quite confusing.

PRAYER REQUEST
I have a special and very important prayer request today for everyone. First, please continue to pray for Max's nose (it is so cute without the stents). Second, please also pray...lots and lots... for the healing of his lungs. This is incredibly important. We are trying several treatments starting day...and the lungs must respond really well...or the docs will want to pursue some other more serious options. Thank you everyone for your love and support of us...Max really needs your prayers....and quite frankly, so do I. Love, Amy and Max