Friday, September 23, 2005


As of this morning, the doctors are concerned that one of Max's nasal passages is narrowing. This could be nothing...or it could be that the scar tissue is building up and he will need another surgery very soon. I begged the doctor...PLEASE, PLEASE, PLEASE make his nose better, but of course only God can perform miracles. So again I turn to you, my family and friends, to keep sweet Max in your prayers and beg the Lord to watch over our little guy and keep his nose open and healthy and breathing clearly.

Regarding his lungs, there will be another test this weekend to see if the treatments, which he is handling like a champ, are making any change.

Both of these issues are critical to Max's health...and therefore I am on pins and needles right now just waiting and waiting.

On a less important note, today the Occupational Therapist is going to perform a test with Maxwell to determine where he is developmentally. The test is not normally done at this age due to the extended hospital stay (he will definitely be behind because of this), however, I wanted to get an idea so I would know if I should work with him more or the same with the different therapies. Should be interesting and at least a good distraction from the more important issues addressed earlier.

My mom, Suzanne, is coming in town tomorrow...and we are very excited to see her! She was here for the first two months of Max's life and then returned to AZ to get caught up on her life for a few weeks...and now she is returning to help me and Elizabeth for awhile. So excited for her to see Maxwell...he has certainly changed A LOT! And it will certainly be helpful to have her here if Max indeed returns to's always a very emotional and scary time.


Drew said...

Hey Amy,

Hang in there. I wish you guys the best of luck on all of Maxwell's tests. Thanks for the update. Let us know about the OT tests. As always, you guys will be in my thoughts.

Take care,

Elizabeth said...

We just got off the phone and I jumped on the computer to check out the blog.

You amaze me.

You inspire me.

You inspire all of us to live life to its fullest every day.

I love watching you love Max...your positive energy for him just fills the room and beyond.

Our prayers are with Max and with his Mama...we love you.


Dylan (and Kristy) said...

Hello Amy and Max,

You are truly an awesome Mommy and son. Your strength and faith are inspiring.

We are thinking about you and please tell Suzanne we send our love.


Kristy, Ray, and Dylan

Anara said...

I'm very glad to hear your Mom is coming again, it always helps to have another person to help with everything, besides, no one likes to be alone. The tests on Max's lungs will be good!!!!! and his nose will heal without surgery, there's my positive thinking!! I am looking forward to seeing his test results. Everyone here is praying for Max. Give Max a hug and kiss for me. I love you two.

Steph said...

Amy and Max,

I'm thinking of you every singe day, hoping and praying that Max is growing stronger, that his nasal passages are open, that his lungs are improving...that both of you are able to get some rest. I love you both so much, and I hope you can feel that from all these miles away.

So glad to hear your mom is coming back to town. Send her my love too.

xoxo Steph