QUESTIONS WITHOUT ANSWERS

I just don't like having answers. Period. And every day with Max comes another day of questions without answers...and boy is that frustrating. Not only is that my personality, but it also is out of absolute adoration and crazy protective love for my son.

I don't want to be too overzealous with his treatments, but I also don't want to let something slide that needs medical attention.

We are experiencing one of those times right now...a major QUESTION with no answers. For the past few days, Maxwell has been experiencing a slew of random symptoms (respiratory difficulties, frothing spit, increased mucuous, major diarrhea, etc.) and the only diagnosis that we (my nurses) can come up with is congestive heart failure related issues.

His cardiologist changed around some of his meds about a week ago and we are questioning whether that is causing these symptoms, or is Maxwell simply sick...AGAIN? I think it is a combination of both.

His symptoms seemed to worsen last night. And what is frustrating is that I was with some girlfriends scrapbooking (so fun - thanks everyone!) and the nurse didn't call me. I even checked in several times and no mention of those issues. Then I come home and the night nurse updated me and I was freaked out. Major oxygen issues, vomiting, diarrhea...the works. I was pretty frustrated that I had not been notified, I would have come home immediately.

So anyway, some of the problems subsided overnight but some didn't. And today is Sunday and I would rather not bother his cardiologist on the weekend (I might give in and do it anyway...sorry Dr. Johnston!). It's not an emergency but at the same time, I don't like waiting for answers. I know patience is a virtue and all...but it has never been a strength of mine. :)

The problem with him "just" being sick again is that he is still on prednisone (steroid for lung issues last week) and so he should really be at the top of his game in the respiratory department...but he's not. He is chugging away like a super speed freight train and his lungs sound crappy to boot.

I am going to take him in to the local emergency ped's office today and check on at least the more immediate problem... MAJOR diarrhea. He went through an absolute terrible case of it last week and quite frankly, his cute lil' behind was so raw I thought it might just fall off! He was in soooo much pain...so sad! :(

It seemed to be getting better, but yesterday it went from bad to worse. In a twelve hour period, he had EIGHT poopy diapers. Crazy! I am going to go and get some Pedialyte and bottled water...just to make sure his electrolytes are ok and also to make sure nothing in the tap water is bothering his system. We'll see.

Another day...another day of questions without answers! But he is smiling his way through all of this...you gotta love that! No matter what, Max is a charming lil' fighter and he'll fight his way through this too.