Friday, August 25, 2006

VICTORY!!!

This is one of those moments where you actually take the time to pat yourself on the back...and not be ashamed to admit it! :) I am sooo proud and excited!

But the magnitude of it also is truly overwhelming...because it's a double edged sword.

I have been working for many months with local agencies to find a source of financial aid to help with Maxwell's medical expenses. I can see where many parents either decide not to pursue other options or simply give up along the way. It has been an exhausting, long process...but it worked!

First we had to do a lot of research to find the appropriate source. Then the tricky part was to get Max qualified. Eeks! We had a lot of meetings, consultations, and paperwork to prove his disabilities and extreme medical fragility (never ever fun to do), and they said now it depends on the government. "Let's wait and see." I called them just about every day and finally we got the good news.

MAXWELL HAS BEEN APPROVED! He will receive a "medical coupon" and it is not dependent upon my income. This was the very difficult point. You can qualify for a coupon if your income is fairly low, however if you are above that limit...you are on your own. (And I agree with that because I understand and support that the government cannot be all things to all people.)

The exception to the income requirement is if your child is extremely medically fragile (as one person stated "one of the sickest of the sickest"). You can then apply for a medical waiver. Most people don't know about the waiver, because few and far between children actually receive it. Like literally...VERY few and far between. It's just crazy that Max was approved!

So obviously I am absolutely thrilled that our hard work has paid off and Max will be receiving this coupon. But as I said earlier, it truly is a double edged sword victory. You are delighted to receive this financial support, HOWEVER it is also overwhelming to think that your child is that sick to qualify for such a high level, extremely limited program. I actually had difficulty breathing the first few days when I found out...it just was shocking. I only know of ONE other child in this entire region that has this waiver. I talked with the mom the other day and she said it gives you the goosebumps, doesn't it? In a bad and good way...yes.

Congratulations Mighty Max!!!

7 comments:

carolyn said...

CONGRATS AMY for a job well done !!!! I know you have been working very hard on getting Max his medical needs. You are truly INCREDIBLE.

I hope Max is feeling better.
Love & Prayers to you both.
Carolyn

Dylan (and Kristy) said...

I know I told you this in person but even still....

CONGRATULATIONS!

What a HUGE, GIGANTIC, EXTREMELY BIG accomplishment and I am so very happy for you.

Lots of Love,

Kristy, Ray, Dylan, and Jonah

elle said...

YAY

Drew said...

Congratulations Amy and Max!

I'm glad to hear the you all will be getting some support. Hopefully, this will reduce your stress a bit.

Take care,
Drew

RNP said...

How exciting!!!! I am sure this was a huge relief. I am so excited you both.

Mary Karr said...

Wonderful news, Amy.

What a relief for you that at least in this one area 100% of the responsibility is not on you.

I know to accomplish this for Maxwell lots of determination and organization were required on your part.

Good job,
Mary

Steph said...

Wow! That's truly an amazing feat Amy! What an incredible force you are, particulary when it comes to Maxwell. You never cease to amaze me...seriously.

And although as you said it has good and bad connotations, hopefully this provides some financial and emotional relief and in the end is a good thing for you and Mighty, Mighty Max.

Way to go girlfriend!

Love,
Steph