Monday, October 16, 2006


This poem was recently posted on our CHARGE list. For those of you who have experienced this journey, it will certainly bring tears to your eyes...

"When Time Stands Still"
by Debbie Hilton-Kamm

It starts with news impossible to hear
It conjures up your every fear
It's when they say your child is ill
That's when time just stands still

In that moment, that suspended time
A thousand thoughts run through your mind
Will he ever laugh and play?
Will I see his wedding day?

All the planning, the hopes and dreams
Are put on hold -- just what does this mean?
His crib is empty, his toys alone
For now, the hospital will be his home

This is a place where time stands still
Where the void's too large to ever fill
For in a hospital's intensive care
Children lie, some unconscious, some aware

And time is measured by a new yardstick
Every second marked by a monitor's tick
Noting every breath the child takes
And every beat his tired heart makes

Just a moment of watching a child writhe or strain
In sedated confusion, or fear or pain
Or pleading for a drink to which you can't oblige
Seems like far more than an entire lifetime

And the children who live far too long
In hospital gowns, trying to be strong
They have old souls, that's what they say
Because in each moment they've lived a thousand days

For those who say time goes by too fast
Sit with an ill child, and see just how slowly time can pass


carolyn said...
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carolyn said...

Amy & Max,
Thanks for sharing the beautiful poem. It is a reality check for all of us.
Love & Prayers,

Jodi said...

Hi Amy and Max ~ I've been following your adventures for awhile and find this post the perfect opportunity to say hello.

The poem is beautiful and brought tears to my eyes. I do not have a special needs child . . but often think of what would of been. My first son was born too early at 25 weeks and did not survive. As you know a journey such as mine is filled with many, "what ifs". Sigh!

Thanks for the reminder of what could of been. You are both an inspiration for your strength and courage.

Wishing you well from Oregon!


elle said...

this is sooooooo ture