SLEEPLESS IN SEATTLE

Quite a turn of events from yesterday's happy email...

Yesterday, as I wrote in the blog, was a happy and uneventful day for Max until around 11 p.m. I was very excited that I would be able to go to bed early and really get a good night's sleep. However, Mr. Max had different plans. He started getting fussy and fussier and fussier...and finally he was simply frantic. Nothing would calm him down. He was absolutely 100% miserable. This went on for about 4 or 5 hours, just like last Monday. We thought it was gas, but couldn't give him anything because his tube had migrated and we were waiting on an xray to determine the location. But sure enough, it was his temperature again. Over 102 and his heartrate was over 200. He appeared to be in even greater pain than last week, which I didn't think was possible.

So we are running the same series of tests as last week. However, they also are watching for pneumonia because his oxygen needs increased dramatically over the night. Additionally his heart rate is much lower than usual and the docs can't figure out the cause for that. And lastly for some odd reason, Max has not urinated for much longer than usual. They tried several times with a catheter and now they have "bagged" his wee wee waiting for urine to test for infection. This concerns them because of his heart condition.

As always, your special thoughts and prayers would be greatly appreciated today. He is resting comfortably right now (with the help of some medications) but I am not sure what is in store the rest of day for our wonderful little guy.

And as they say, another ride on the roller coaster.