Monday, September 05, 2005


Quite a turn of events from yesterday's happy email...

Yesterday, as I wrote in the blog, was a happy and uneventful day for Max until around 11 p.m. I was very excited that I would be able to go to bed early and really get a good night's sleep. However, Mr. Max had different plans. He started getting fussy and fussier and fussier...and finally he was simply frantic. Nothing would calm him down. He was absolutely 100% miserable. This went on for about 4 or 5 hours, just like last Monday. We thought it was gas, but couldn't give him anything because his tube had migrated and we were waiting on an xray to determine the location. But sure enough, it was his temperature again. Over 102 and his heartrate was over 200. He appeared to be in even greater pain than last week, which I didn't think was possible.

So we are running the same series of tests as last week. However, they also are watching for pneumonia because his oxygen needs increased dramatically over the night. Additionally his heart rate is much lower than usual and the docs can't figure out the cause for that. And lastly for some odd reason, Max has not urinated for much longer than usual. They tried several times with a catheter and now they have "bagged" his wee wee waiting for urine to test for infection. This concerns them because of his heart condition.

As always, your special thoughts and prayers would be greatly appreciated today. He is resting comfortably right now (with the help of some medications) but I am not sure what is in store the rest of day for our wonderful little guy.

And as they say, another ride on the roller coaster.


Zach and Mel said... upsetting. I don't even know where to begin. I am so proud of you and Max...overcoming whatever life has thrown your way. It upsets me the pain and suffering you both have to go through. I wish I could take it all away. I hope it comforts you to know that you guys are in my constant prayers.
Love you,
Mel and Zach

alisen barlean said...

Amy and Maxwell...this is my first comment to you via blog. I just want you to know that my heart is with you daily. My family and I check your blog daily to see how everything is going, you both are always in our thoughts and prayers. I cannot begin to know how you are coping...but you have proven to me to be a superwoman of sorts. I admire you and Maxwell's strength! Please know that you are in our prayers every day.
Lots of love,
Alisen and family

Kirstin said...

Amy & Max - I just wanted to let you know I'm thinking of you both. I know the past fews days have been very challenging - so many ups and downs...I hope all of the prayers coming your way bring a sense of comfort.Tons of love to you both..Kirstin

Drew said...

Amy and Maxwell, I just wanted to let you know that you've been in my thoughts. I keep checking the blog hoping to see good news. I hope you are both able to get caught up on some sleep soon.
Take care,

Elizabeth said...

Hey lil' Max...Mama needs some sleep...and so do you! Take care of yourself and let's get you home soon. We love you both so much...
Love, Aunt Elizabeth

Ruthie said...

Thoughts and prayers for you both are a regular thing for all of us who know you. But it doesn't hurt to include a few more! From all the comments that this blog has had you can definitely be assured that you are not alone. Hugs and kisses are even being included in this comment!!

Steph said...

Hey Amy and Max,

So exciting to see that Max is up to 6 pounds 10!!!! VERY encouraging.

...and then I read about your rough night. I so wish there was something we could do to give you and Max a break, a good night's sleep, some peace, etc. Although there is still rough road ahead, you've come so, so, so's truly amazing. YOU are truly amazing.

Love and miss you guys,

tessa said...

little maxwell...sad to hear you are not feeling well again. i know that you will be feeling better soon, all you need is a good nights sleep and some love from your mom, which i know she had a lot of love to give. take care
much love

Sean and Renee said...

Amy and Max...we wish we were there to give you both a big hug. You guys are two of the strongest people we know. May God bless you both with comfort and a good night's sleep. So happy to hear of Max's weight gain! Great job Max!
Love, Sean, Renee and Rowan