MAX IS MISERABLE / SERIOUS PRAYER REQUEST

We are now in Hour 15 of Max's misery. He started crying last night at 8:30 p.m. and hasn't stopped. He has somewhat slowed down this past hour, but still is quite agitated. He has had FOUR doses of Ativin, one of morphine and one of Fentinel (sp?) and has virtually been unresponsive to any of these drugs. Hopefully the latter of the drugs is kicking in as we speak...and I just asked for another dose of Ativin as well. Usually one dose of sedation calms him down quickly. That is what is really odd about what is going on...this is completely different than the usual Mr. Max.

We were very hopeful the sedation would help because his heart and lungs were/are taking a beating with his agitation. His heart rate was in the 220s and 230s for most of the night...and his respiratory was reaching 180. This of course caused quite alarm within the team. Additionally, he had a fever throughout this at 104. This morning they started an IV because he was so dehydrated and they performed a series of tests. So far nothing out of the ordinary.

Our regular medical team brought down docs from the ICU to get involved last night...and they too are stumped. They are making plans right now to transfer him up to the ICU for more intense care...and in case they need to offer heavier sedation.

As you can imagine, this is absolutely killing me. Not sure if there is much worse than hearing your baby cry so miserably...it's the most helpless feeling. I am taking a five minute break right now because I am about to lose my mind...got coffee and am now writing to all of you to ask for warm thoughts and prayers of peace and comfort for my sweet lil' man who is really struggling.

During all of this he is hooked up to a million and one wires because they are doing an EKG (heart monitor) on him for 24 hours, so it is difficult to move him around very much. The only comfort he is finding is sucking on my pinky finger, having his bum patted, and a cool towel on his sweet lil' head. Even with that he is still quite agitated, but it seems to calm him down slightly.

Max really, really, really needs some good thoughts sent his way right now...thank you in advance for sending extra warm wishes today. We need them desperately.