Thursday, October 06, 2005


At 6 am our day started with MANY attempts at a blood draw. Max's veins are "challenging" as the IV techs always say. He was not a happy camper....but he is such a trooper. Sucking on my pinky seemed to help at least a little. They finally decided to give him a break and come back later. That time fortunately was successful. ENT then stopped by...his nose looks ok. They can detect some scarring but they are still very open. We are keeping our fingers crossed on that issue.

There is an LP (lumbar puncture) scheduled for noon today. That is when they stick a needle in the back and drain spinal fluid to test for infection. Not a fun procedure, as you can imagine.

We decided during yesterday's care conference to move forward with the surgery for the G Tube and Nissen. That will be hopefully next week...if he recovers soon from the pneumonia and other issues. Everything is pending of course on his health. He will be in the ICU for some time after the surgery. This is a fairly complicated surgery and will be a good test on Max's strength and his lung reserves. The docs are very curious on how he does after soon is he extabated, how soon does he bounce back, etc. That will help determine if he will need a trach, status of overall health, etc. While I am nervous about such a big surgery, it is worth it because it will help with his feeding immensely.


rebecca said...

Thanks for the update Amy. Again, I will have many positive thoughts today and all next week. I pray that the G tube goes in with out any problems. Your courageous attitude supplies Maxwell with endless positive energy - keep it up.


tessa said...

Amy..thanks for the update again..i look forward to seeing how you are both doing everyday..i will be sending all my good vibes down to seattle for you and maxwell..continue all your love and support you are one amazing woman who has one amazing little boy.
much love

Steph said...


Between now and the surgery can you try to take a couple hours for yourself? Maybe a massage?

Love you,

Mark said...

Lord Jesus Christ, Good Shepherd of the sheep, you gather the lambs in your arms and carry them in your bosom: We commend to your loving care this child Maxwell. Relieve his pain, guard him from all danger, restore to him your gifts of gladness and strength, and raise him up to a life of service to you. Hear us, we pray, for your dear Name’s sake. Amen.

Anara said...

WOW!!!! you two have a lot going on for the next several days. I wish for you courage, strength,wisdom and hope. But then you have been demonstrating these qualities ever since Max was born. You are an insiration to all Mother's every where. You just keep doing exactly what it is your doing, Max has made it this far and I truely believe that it is all due to your Love, dedication, and un-wavering faith that he will make it through what ever they throw at him. My faith and prayer's and Lots of Kisses for Max, I Love you two!!!!! Anara

Val said...

Hello Amy and Maxwell, Ran into a Curves member and was told about this blog .I think about you 2 all the time, wish I come come out there and be of some help to you. I'll look forward now to reading this every day!
LOVE & PRAYERS to you both,
Ps..Is there a Krogers there...hehe?

Marty said...

Maya and I continue to send up prayers for you two.

Marty said...

Maya and I are continually lifting you two up in prayer. I know that Max will feel better after his surgeries. May God grant you some peace during the next few days.
Marty and Maya