DOCTOR'S APPOINTMENT AND TODAY'S EEG

Max went to the doctor yesterday to get his ideas on the increased O2 and the vomiting. It was interesting traveling again with his oxygen tank...it had been a week since he was using it during the day. But no biggee...I have two working shoulders! :)

We were there for hours and hours because he needed several chest xrays and there was a long wait. And of course Max garnered much attention from the other patients. There was an older gentleman that just kept staring at us and all the equipment. He wasn't trying to be rude, he was just very curious! I forget sometimes what a sight we are!!! :)

Max probably has not had a chest xray for over a month and let me tell you, it was MUCH easier last time. He showed his strength yesterday and refused to lay still even with two of us holding him down. It was quite the fight to wrestle this lil' baby! But finally they managed to get decent shots...and fortunately no pneumonia, serious aspiration, etc. Same chronic lung disease with just a slight worsening in one area...but nothing terribly new.

The most difficult part of the experience...in addition to having to restraining my crying baby (not fun at all, I had tears in my eyes too!)...was that this particular technician had not worked with Max before and could not grasp the concept that Max can not sit (YET). She kept asking, are you sure he can't? I'm like...hmmmm yes, I'm sure! She must have commented on that 3 or 4 times saying how much easier that would be. I'm thinking, yes A LOT of things would be easier if he could sit (or even really hold his head) but that's just not our reality right now. :)

Fortunately yesterday and over night he had no more vomiting episodes but his oxygen requirements are higher. He had a million desats last night but half the time they were because he moved his cannula to on top of his nose. That's his funny lil' trick. I kept him on Pedialyte most of the day and added in regular feeds at a very low rate over night. For now, we are halting any "oral feeding trials."

EEG
We leave in about an hour for Max's EEG. They said to bring his favorite bottle to keep him relaxed...which made me smile. For those of you who don't know, Max cannot drink out of a bottle...only through his Gtube. But the nurse of course would not know that...she was just calling to prep us for the procedure.

Anyway they said we would be there for several hours and hopefully Maxwell cooperates! We are trying to keep him very active this morning so that he falls asleep or at least lays still for the test. I don't know if we will have any results today. I think I will have another appointment with the neurologist once he has a chance to thoroughly review the results.