Friday, December 01, 2006


The link below is a story about Alex, a four month old CHARGEr...very similar medical conditions to Maxwell. He had a very close call yesterday. His grandmother is very active on our listserv and filled us in on the situation this morning.

I have often written about the risk of aspiration and that is exactly what happened here. Alex was being fed through his Gtube (no Nissen yet) and all was well. His mom left the room for a moment and returned to her baby turning blue. He was refluxing and then aspirating into his lungs. The surgeons are wanting to move forward with the Nissen once he is stabilized.

What a terribly frightening moment for Alex and his mom. My heart aches for them.

Please keep baby Alex in your prayers as he has been intubated and remains in critical condition.


Mark and Jaye said...

Wow what a story! I hope Alex pulls through and gets better....I feel for his family and will keep them in my prayers...

CrystalandEva said...

I have been praying for Alex since I read about him on the CHARGE list.

elle said...

yeah it is frightening but its a reminder of wat all of us can go through