Thursday, July 06, 2006


Hey everybody, I don't know what the fuss is all about around here! So what if I breathe like a maniac and I sound like I have been smoking ten packs a day for ten years. No biggee, right? :)

But seriously, overall I am doing ok. Yes medically I am not doing great, but I'm not letting that get me down and that is what is most important. I have given my mommy lots of "happy dances" to keep her in good spirits. She's a little sad that we are here again...brings back a lot of scary memories for her.

In between medical treatments and all the doctors stopping by, we have been playing and doing lots of therapy. (Have I mentioned how much progress I have been making? I'm pretty darn incredible!)

Unfortunately twice yesterday during therapy I spit up milk unexpectedly. That confused my mom and stressed her out a little. At home she has the suctioning down to a science. She pretty much sits on me to control my arms and head!!! (Doesn't sound fun, does it??? Trust me, it's not.) But here I am in the crib and there are a million more wires on me, so she can't do that as easily. She was yelling for help but no one was near...pretty stressful and frustrating but we managed.

ANYWAY, the good news is that I didn't vomit that much this morning or throughout the night. This past week, I have been "tossing the cookies" at least a few times in the morning during all my gagging and coughing. I am on continuous feeds (a lil' annoying for me and mom...yet another cord for me to get tangled up in!!!) so perhaps that is helping. That also is a sign that a lot of this could be because of my failed Nissen. That surgery will definitely not be fun. Anesthesia, the PICU, intubation...the works. Mom and I are *hoping* we don't have to resort to that.

My night was ok...I slept pretty soundly. Mommy acted as my body guard, which was great! Everyone kept wanting to poke and prod at me and some of it was not necessary. So Mom would stop everyone before they did anything. She's too funny! Her "spirit" works in my favor!!! :)

We'll see how today goes. Hopefully we work out the "kinks" in the system, and Mom will be able to relax and perhaps even sleep a bit. Gotta go, we have rounds soon and you know that Mommy loves to make her voice heard regarding me!!! :)

Thanks for the prayers...keep 'em coming!
Love, MIGHTY Maxwell


ang said...

Mighty Max,
In those tangled wires you temporarly live in please give your mommy a big hug for me.

If by chance and I am seriously praying you aren't there on Monday Your big buddy, his sisters and I will come and see you after his rounds with the Craniofacial Clinic.

Have mommy email your room number.

Saying prayers you get good news on this morning's rounds.

Cedie L Mock said...


I am so sorry to hear that you are in the hospital and may have to have surgery! Please get better soon and be a strong boy for your mommy. Cedie and I will be praying for you both.

Jennifer & Cedie Mock

alisen barlean said...

ALWAYS thinking of the two of prayers will be ten-fold this week! love you guys so much and will keep plenty of positive thoughts throughout your stay! we all know that Max just had too much attention at his bday party and wanted some more! ;) kiss the little cutie for me and tell him to get home!
sending you lots of love and prayer, alisen

Dylan (and Kristy) said...

Hi Max,

Dylan and I are going to be at Children's tomorrow and if it's okay, we'd love to see you. Sorry to hear that you are caught up in all those wires. But I bet they are fun to play with!

Love ya. We're praying you are feeling better soon.

Kristy and Dylan

Menjiness said...

You go Max! Give Mommy more happy dances and keep her spirits up. Tell her we prayer for you DAILY!

Desiree :)

Off Route 75 said...

Keep taking care of your mommy, little buddy! Every smile counts, so give her plenty!

Steph said...

Thanks for the update Maxwell! I'm thinking of you each and every day...we all want you out of that place soon!

Keep the happy dances coming...

Lots of love,

Lori said...

Maxwell, you always keep us guessing, don't you!!! We love you and hope that you're feeling great soon and can get back to the comforts of home-- although I'm sure that your buds there at Children's are ssooooo happy to see how big and strong you are!

love and prayers to you and your dear sweet mommy--

the Mellos

elle said...

wat mummy doesnt specialy ones with speical needs kids