MISCELLANEOUS UPDATES

SUCKING
Max is really making progress on overcoming the oral aversion! So excited about this! The past two weeks he has really taken to my pinky finger as I have written about, but today the OT and I worked with him taking drops of my milk...and he did great! Everytime we gave him a drop around the pinky, he would suck harder. The OT wants me to work with him on taking the binky (which he doesn't care for) and then we can try with the binky trainer, which is a device that they put small amounts of milk through. Then depending on this, we might do a swallow study to check everything out. We are working very very hard with this issue! It's likely he will take a few steps back after the surgery because he will be intubated for some time, but hopefuly not for too long!!! So proud of you Max!

BACK ON OXYGEN
Oh well, Max gave it a try! He does really well off of oxygen when he is awake and happy, but get him fussing or sleeping and his sats start to drop. So we are putting the nasal cannula back on. He is sooooo close to being free of that...but just not quite yet!

CARBON DIOXIDE
His numbers have not gone down, which is discouraging. But I talked with the pulmonary doctors today and we are not going to "freak out" at this point. We are just doing the "wait and see" game.

SURGERY
Pulmonary is available and will be able to do the bronchoscopy, so the GTube and Nissen surgery is now a definite for Thursday!