This morning Max's night nurse said it was liking working in the ICU last night with all the bells and whistles going off all the time. My sentiments exactly. Max was having bradycardia all night long...and for a good chunk of the day too. His monitor is going to break down from all the alarming! (And quite honestly, I might too!)
He went to sleep super early (very unlike him and another sign that something might be off with his heart) at 5 p.m. and didn't wake up until midnight when I woke him up to meet his Auntie Kirstin. Plus he needed all of his meds, diaper change, etc. From 5 p.m. until midnight (when his nurse arrived), he brady'd pretty much non stop. It was absolutely crazy.
Who knows what in the world is going on? He is wearing the halter (heart monitor for 24 hours) so at least we will have a record of everything. I talked to cardiology several times today and they are discussing what to do. The odd change over the past day is that now his "awake" heart rate has decreased significantly too.
Now I am not telling you all of this to stress you out or worry you. (I'm doing enough of that for everyone, trust me!) I just want to keep everyone informed. And I am confident that whatever is going on with Maxwell, we will fix it. Remember, he isn't called Mighty Max for nothing! :)
Please keep us in your prayers...him for his health and me for my sanity! :) Thanks!
* Tomorrow we are supposed to get together with his CHARGE friends in Seattle. Hope we can still go and not be in the hospital instead!
4 comments:
Amy,
You and Max have all my prayers today sweetie!
Hope you can make it tomorrow - but understand if you can't. If anything, you'll have a room full of support! :>)
Love,
Rebecca
Cameron and Nathan's mom
You are in my prayers and I hope you get to go see all the other CHARGErs tommorrow. I know Evan really wants to see you so stay well so you and mommy can go.
HUGS!
Crystal and Eva
Mr. Max - We're praying for you here in Memphis. Hope you can avoid another hospital stay. Your mommy's gonna need you to help take care of her and get her feeling better soon! Absolutely LOVE all the recent pictures, too. You're getting to be such a big, handsome boy!!! No wonder your mommy's so proud of you!
Praying for you and for Mighty Max.
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