Sunday, October 22, 2006

ANOTHER OVERNIGHT ADVENTURE IN SEATTLE

Tonight we head to Seattle for a 2 1/2 day stint at Children's. We have lots and lots of clinic visits again. Some of the highlights include:

Craniofacial - Does he have a submucous cleft palate? Will this require surgery? Is his "soft spot" size acceptable - still not completely closed? What about his jaw? Max's lower jaw is recessed and during his hospital stay, there was talk that in the future he may require surgery if his gumlines don't match up.

Urology/Testicular Ultrasound - We will be doing the prep work for Max's surgery to bring down the testicles and making sure that he indeed needs this procedure. It will most likely happen very soon.

General Surgery - What should we do with Maxwell's Nissen??? There is great debate on this one.

Audiology - This will be Maxwell's second behavioral hearing study. The first he did "ok" but he wasn't really paying attention to instructions. But he has developed so much in the past few months that I am hoping this goes much better!

Hopefully these overnight stays will be easier than last time. Practice makes perfect, right? Plus Grammy is in town and is joining us on our adventure too. She can help watch Maxwell while I load his mini hospital into the room! That was very tricky last time.

Max has been very congested the past few days and has had difficulty sleeping through the night. He's requiring a lot of suctioning, nebulizers, and CPT (clapping of the chest and back to move the congestion in the lungs). So I am curious to see how much sleep I will actually manage. No sleep for two nights yet managing serious conversations with doctors all day...hmm, that reminds me of our 6 months in the hospital! :) However, as an outpatient you have to coordinate a lot of the studies, appointments, etc. yourself, so you have to really be on your toes. It will all work out...we'll just keep thinking of it as a fun lil' adventure! :)

Off to Seattle we go...

4 comments:

carolyn said...

Max, I will be thinking of you, Mommy and Grammy on your road trip. You are going to be a busy little man and show everyone one that you are MIGHTY MAX !!!!

Mommy, take lots of pictures to share with all of us.

Love & Prayers,
Carolyn

Anonymous said...

saying prayers for maxwell and these studies.. Maxwell's big buddy here (my son)is saying prayers for the palate and jaw surgery options. He's been through one and awaiting the other. Hugs to Mommy too, hope that she can find some rest.

Hugs/Prayers
Ang & Son

Anonymous said...

saying prayers for maxwell and these studies.. Maxwell's big buddy here (my son)is saying prayers for the palate and jaw surgery options. He's been through one and awaiting the other. Hugs to Mommy too, hope that she can find some rest.

Hugs/Prayers
Ang & Son

elle said...

wow good luck there update us all the surgical stuff pls